I regard hope as a double-edged blade. Yes, real hope can sustain through hardship, but false hope can prolong suffering beyond any realistic chance of recovery. The hardest part is being honest enough to distinguish between the two. I’ve had to do it a time or two so I know how difficult it can be. But then, I also understand that failure to recognize and act upon the difference is really not an option.
I sense that you’re more “progressive” than I am, and that’s fine. It’s considered noble to strive for equality. I’m almost Darwinian in my social view because I don’t see us reaching a post-scarcity society anytime soon, and trying to help the underprivileged in an environment that’s anything less necessarily places an additional burden on society as a whole. We take it on faith that such outreach strengthens society, but Nature and common sense beg to differ. I wouldn’t go to the Nazi extreme of euthanizing the disabled, but where’s any data showing how essentially making disabled people wards of the State benefits anyone besides the bureaucrats? Did you know there are school districts where Special Ed. teachers don’t even teach severely disabled children to read? The teachers say it’s frustrating and pointless, but how the hell are those kids going to be anything other than potted plants without literacy?
I still haven’t told you about my tax situation either. I owe the IRS over $100K all because the Democrats thought it the thing to do to screw certain “fat cat” Republicans who hadn’t been paying the employers’ portion of the Federal Income Tax for their children’s nannies. While it’s colloquially called the “Nanny Tax,” it applies to any domestic employee who isn’t a licensed nurse. I’m just fortunate that the IRS is prohibited from seizing a person’s primary residence or vehicle before they die.
So yes, you may investigate other assistance options as there’s no guarantee my plan is feasible. Just remember that I cannot receive any assistance that could be construed as income or an asset.
From: Michael Wrenn <firstname.lastname@example.org>
Sent: Friday, March 23, 2018 9:06
To: Scott Royall <email@example.com>
Subject: Re: Insurance Assistance
Scott, I greatly appreciate you sharing your tribulations with me. When I left your home on Monday, I was under the impression that you had given up hope and resigned yourself to an early termination. Now I have a better comprehension of your situation.
I can appreciate your desire to remain independent. It is a proven fact that once a human loses their independence, their mental state and health quickly decline. I certainly do not want to see you come to that end either. I feel that you have plenty of years ahead of you and Good Lord willing, you will be able to stay the manager of your own care. And of course, none of us will live forever, and some of us have no desire to live any longer than necessary. I won’t drag you into my own issues with this world. But those issues are between me and God and the two us will have a long (or short) discussion about WTF was he thinking! (o:
I am willing to help you out in any way that I am able. I’m happy to research more options. I’d like to say that it would be hard to believe that our country doesn’t have assistance for those with your unique disabilities. But then again, this is the American government. If it doesn’t get them re-elected, it’s not important.
So, please don’t give up hope. I’ll continue to keep you and the dogs in my prayers.
At your service,
Michael Wrenn – K5WRN
Sugar Land, Texas USA
On Thu, Mar 22, 2018 at 9:25 PM, Scott Royall <royall> wrote:
That is not a question easily answered because there are so many factors involved. On one hand, you don’t want to discourage the friend who is legitimately trying to help. Yet, you also have an obligation to make him understand that so much of the “crap ton of information out there” is completely inapplicable to the specifics of your situation, because you do not want him wasting effort on dead-end rabbit holes.
The crux of the matter is that public assistance programs like Medicare are set up to deal with the typical scenarios. A severally disabled person with high mental function who has a home and is determined to retain what social interactions he has left isn’t typical. We’re probably rare enough to be statistically insignificant so finding assistance that even acknowledges that such a scenario is possible is the first hurdle.
Then there is the question of what type of care is offered. So-called professional caregivers only help with the ADLs, eating, bathing, dressing, toileting, and transferring. That’s all Medicare covers, and I certainly need help with them. However, that’s merely existing, not living. Unless I’m prepared to just sit there not going anywhere, watching everything fall apart around me, and my dogs starve, I unfortunately need more assistance than the usual sources provide. This is why it has been so essential that I have managerial authority over my care. I’ve operated this way for thirty years, and I genuinely think it is the only way for someone in my position to have anything like a life.
Although there are other considerations, I’m going to save them. As I said, I have an idea that could more than offset the end of my long-term care insurance. It’s based on the earnings capacities of my parents’ assets. Apparently, they are several times the $55,000 in caregiver expenses I have annually. What I need to do is write a very detailed email to the financial planner and my brother, John, who is basically the trustee. They are largely unaware of the details of my situation, and I first need to confirm my understanding about the earning potential of the assets, and then get John to agree to my plan. That’s going to be a long email so I’m not planning on writing it until June. John has so much else on his mind that I think the email would sink into the noise if I wrote it sooner. As it is, my insurance will last until February. It’s fine with me if you want a copy of the email.
You need to recognize I don’t intend to live forever. I will be satisfied if I stick around long enough to let Leia live out her life. Beyond that doesn’t appeal to me, because I learned very early that group care is dehumanizing no matter how beneficent the intent. I volunteer Leia’s time for pet therapy at a local nursing home, and every session is a stark reminder of why I plan to end my life on my own terms. I definitely don’t plan to hang around long enough to become any more disabled than I already am. If you can accept that and still want to investigate other care options, I appreciate it. Options are good.
From: Michael Wrenn <michael.wrenn>
Sent: Thursday, March 22, 2018 6:52
To: Scott Royall <royall>
Subject: Insurance Assistance
Good Morning Scott,
I’ve done some cursory research on state and federal assistance. However, there is a crap ton of information out there. So I’d like to know if you are open to allowing me to help you out. If so, I need to know what insurance you currently have, and what avenues you’ve already investigated and the results of said investigations.
Don’t give up. Help is out there.
At your service,
Michael Wrenn – K5WRN
Sugar Land, Texas USA